Welcome to my blog about my journey through cranio with my youngest Denver. I write this blog to benefit myself by getting my feeling out and hope that someone may read this and get an understanding about what we go through as mums dealing with cranio. Some people thimk the journey of cranio ends after the 1st cranio surgery but that is far from the truth, this is a life changing journey that goes on for the life of the child and their family. I often write things I would never have the courage to say out loud to anyone, often the feelings are very raw and honest. So join me on my roller coaster ride through cranio and lets get through this together.

Tuesday, February 22, 2011

hindsight.....

Was laying in bed this morning wonering what we will think of this time of dr's appionments and operations for Deni. Will we think yeh we did it it's over and I won't change a thing. Or it's still going, will it ever end. Or it's over for now I wish I had know ......... before this all started. People say hindsight is a wonderfulll thing, but is it? I wonder if we will come out stronger for this or weaker and exhausted. Will we ever be able to talk about it freely without wondering what the other person will think if we say what we feel, will we be able to talk about it without that lump in my front threatening tears at any moment. Will we one day look at Deni and not see the wrong shape of his head and just see him for him. Will he be the same or will he be different? Will this end or is this a life long journey? Will his children have cranio? Will he be scarred from this? Will he have a fear of medical tests and operations? Will he be ok? How will our other children feel about this time in our lives? Will they feel that they were left out or abdnoned throughout this? Will they wonder why their family, their brother? Will they have a fear of any thing medical? Will their children have cranio? My son Terry said to me the other day "I feel so sad when ever I look at Denver, it's not fair. I don't know why I feel so sad, I suppose it's because I love him so much." I think it's fair to say that this time in our lived will have a lasting effect on all of us.

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