Welcome to my blog about my journey through cranio with my youngest Denver. I write this blog to benefit myself by getting my feeling out and hope that someone may read this and get an understanding about what we go through as mums dealing with cranio. Some people thimk the journey of cranio ends after the 1st cranio surgery but that is far from the truth, this is a life changing journey that goes on for the life of the child and their family. I often write things I would never have the courage to say out loud to anyone, often the feelings are very raw and honest. So join me on my roller coaster ride through cranio and lets get through this together.

Monday, March 21, 2011

getting ready........................

Here you go everyone the date is the 29th of march, yep next Tuesday, so we are in the holy shit i have so much to do, we have to get ready. We had his pre op appointment and we got the surgeon i like not the prick we had the appointment with last time, the bald shiny head one. Yeah> I am so happy, so relieved. I feel i can trust him with my son, I feel that Deni will be in safe hands, that he will do his best and that he respects Deni. I can't begin to tell you how relieved i am, i wasn't aware of how stressed and worried i was about the other surgeon. so the count down is on. we told the kids on Friday night, kids are great. they knew that Deni was going to need surgery and what was being done but know they know when. they just asked lots of questions and we just sat and gave everyone time to talk and it felt really good to tell them and have it out in the open.
I was feeling really alone in the process before but i do now feel like i am being carried but so many people. We have received a special cranio blanket for Denver to take to hospital, he is already sleeping with it every night, today we received a care package to take to hospital from other mums who have been where we are, another cranio mum is sending us a special hat for Deni to wear after surgery. There is love just spilling in. and my family is great, giving us time and space to talk and making sure we are all OK and that everyone is staying afloat. they are the solid foundation, on which we stay afloat.
We found out at our pre-op appointment that the surgeon wants Denver to stay near the hospital for up to 2 weeks after the surgery, that was a bit of a shock, so we have been trying to figure out accommodation and money as we hadn't quite planned on it. But i think it is started to work out. I was really hating that i would be away from home for so long but know i am starting to see that it might be a blessing. We will all be really tired after our week in hospital and having that time in melb away from house work, home stress Deni and i will have the chance to rest and catch our breathe with having the reassurance of being near the hospital if needed. I will miss my other kids but am starting to think of ideas for having them come down and visit, so many friends have said we will come and visit any excuse to go to melb. I was worried i would get really lonely but today it is all sitting well. I feel at peace with it all today and glad to be getting ready now rather than just waiting.

wake up mum, look at my lizard i found.

cousins, nothin better.

No comments:

Post a Comment