Welcome to my blog about my journey through cranio with my youngest Denver. I write this blog to benefit myself by getting my feeling out and hope that someone may read this and get an understanding about what we go through as mums dealing with cranio. Some people thimk the journey of cranio ends after the 1st cranio surgery but that is far from the truth, this is a life changing journey that goes on for the life of the child and their family. I often write things I would never have the courage to say out loud to anyone, often the feelings are very raw and honest. So join me on my roller coaster ride through cranio and lets get through this together.

Thursday, September 29, 2011

Alone and scared

I am reliving it. From start to finish. The worry, the talking and no one hearing me, the failure I feel about this, knowing I can't protect my son. Tomorrow we go to the surgeon. He has had 8 infections in his scar. 5 in one spot, 2 in another and then one other spot. The one he has now looks nasty and is getting sore. Iknow the trauma of going back there will resurface for him and for me. I sit here in bed at midnight and I can feel the tension in the house, the air, each other and in me. I am scared and feel so very alone. I want to curl up in a ball and sleep. It's just Deni and me tomorrow. I will be strong tomorrow, I will have the best five year old holding my hand as we go up elevators, down corridors and into rooms.
Pray for Deni and pray for me cause I don't want to feel alone.

1 comment:

  1. Angy, you will be in my thoughts and prayers. I can imagine what it's like to 'go down the corridors' again and have things resurface. Please don't be scared or alone. If it helps I'm hear to listen when you need it. Don't worry about my crap, I'm getting better! - and I'm here and I want to help you. Love Deb xx

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