Welcome to my blog about my journey through cranio with my youngest Denver. I write this blog to benefit myself by getting my feeling out and hope that someone may read this and get an understanding about what we go through as mums dealing with cranio. Some people thimk the journey of cranio ends after the 1st cranio surgery but that is far from the truth, this is a life changing journey that goes on for the life of the child and their family. I often write things I would never have the courage to say out loud to anyone, often the feelings are very raw and honest. So join me on my roller coaster ride through cranio and lets get through this together.

Tuesday, December 6, 2011

We are having a holiday from the hospital...

It feels like so long since we have been at the hospital, but in reality it hasn't been that long, but it does feel like a sense of freedom not to be have to constantly go there. Our last visit was with the main surgeon and it went well, better than what i thought it would. Denver's wound is now healing beautifully no sign of infection or anything else other than a normal healing wound. Anthony the surgeon is happy, happy, happy. He is happy that Denver now appears to be healing well, happy with the shape of his head, happy with how Denver appears to be going. The only concern is that Denver was unable to do his last lot of neuro tests because he was too restless and not able to concentrate, we will try to re-test at a later date. But that aside he is happy with how it is all going. Anthony is going to look further into the cause of the infection as he had never had any where he had to go back in until this year and now he has had two, so he is wondering what is going on weather the stitches have changed in the way they are made or some thing like that. We got to look at the before and the after Ct's of Denver's head and i just found it fascinating the difference. In the pre-surgery one it was just out there for all to see that the shape of his head was just not right, too long, stuck  out in some places, skinny in other spots just wrong altogether. The post-op ct shows such a different shape head you can see where the major changes have been but it was also disturbing to look and see because it also looked like a jig saw puzzle. You could see exactly what they had done to Denver and what he went through. It also helped me understand what i was feeling when i feel his head i could put the two and two together to get a fuller picture. So yeah, we get a little break and maybe just may be i can relax for a tiny moment. (maybe)
Denver had started orientation at school a big thing for us as his future has been so uncertain and we weren't sure whether he would be able to go next year or not. So to think that he will be able to go like we had always planned will be a relief to us. I have some lingering doubts in my head about how he will go and whether he will be up for it. There are little things that he struggles . with and are harder for him due to his cranio. Luckily we go to our small local school where my other four kids have gone so the school knows us well and Denver's teacher next year has taught 3 of my kids and knows Denver's history and all about him, so its nice not to have explain it to them and have them already know all about it and  the journey that Denver and we as a family have been on.
We are going on a family holiday this Christmas, my wish that i have had all year is coming true. We get to go away as a family and pretend that cranio never existed.

Denver all ready to try out school.




P.S. I love hearing from all you cranio mums out there and knowing that i am not alone, that you are all here supporting me and Denver.

1 comment:

  1. That is so good that you can see a difference in the before and after scans. What a big year. So glad your Christmas wish is coming true! xxx

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