and it keeps going..........

15th October 2010

We have an app. with the dr who suggested the x-ray and i am happy cause i really like her. Feel ok. Our app. is for the 27th of this month, thats quick. I notice on the letter that they have us markes as a urgent double booking. SHIT. Now I am worried. But it's not that bad and i really like this dr. Will just have to wait and see.

26th October 2010

Tomorrow is the app. Matt is coming which is nice but weird he has never come to any of deni's other app with his weight, I am happy he is coming but know that that means he is worried. We tell deni that we are going to his hospital to look at his pictures and  to see if he is smiling on them. He is excited. I know I won't sleep tonight.

27th October 2010

I still love this dr. She was straight to the poing we think he has craniosynostosis. Which means that one or some of the suture lines in his head have fused together too early. Which means that his bones can't grow correctly and thats why his head is long and thin. We don't know why he has it. It can be gentic but we have no history of it. It is more common in premmie babies but deni was well and truly cooked. So for us it looks like just bad luck. She has a feel of his head, deni really likes her and is having a good chat. She asks me when I first notice and I tell her the short version of the story and she says "well done, welldone for assking the question over and over again. Thankyou for not giving up." Did i say that i love her. She asks about his heath history where he was born and stuff and for the first time ever I am happy to say that he was born at the womens, because they are happy with that answer. I know that if I had had him at home like I planned they would be wondering if it was noticeable at birth and if I had had him in hospital it might of been picked up by the peads. I smile to myself  that thank god I don't have to have that discussion right now. She recommends a CT scan so they can see all the lines in his head and the shape. then we are off to the cranio dr with the results.  We leave and i feel ok that wasn't to bad, she doesn't seem to worried. So we head home to wait for the time and date of the CT.

11th November 2010

Today if the day of the ct scan and it's been alwful. His app is not till 12 but because he has to have a general  for the ct so he doesn't move he is not allowed to eat or drink. Deni loves his breakfast and grazes all morning till mid afternoon. So trying to keep him away from food and drink is hard work and it sucks for us all.

WE get to the hospital and deni has cried and whinges the whole way in the car, but we made it and on time. The waiting room for day ops is alwful no one talks to any one else and the kids are tired, hungrey cranky and bored. Luckily we don't hav that long a wait and we are called. The nurse says don't get excited I am just here to give you information and asses denver. Bugger! He will be one of the last on the list as it goes fromm oldest to youngest. So we sit and chat she starts focusing on denver and seeing how well he listens and they read a book, they she turns to us and says I think he could do the ct with out the general I think he is calm enough and listens well. I think he can do it. I am unsure what if he moves, what if he gets scared of the machine. What if? What if?
She says lets go have a look and see how he goes. So off we trot and we see the big donut machine that takes the special video and pictures of jis head he gets to put a sticker on it and then he gets a ride on the table that moves. They then bet him that he can't stay still as a statue while the bed and the machine works. He does and so they go once move and then you get a prize. Well with a huge smile on his face for the pictures he goes in the machine as still as can be and it is done. It is over. All that worry for that. He jumps down gets his proze waves good bye and says can we have breakfast now mum.