So I have to get us ready for hospital which means I have to start planning and I hate planning. So I have written a list of what we need to take it looks like were going on a vacation pj's, books, DVDs, pillow, blanket and everything else we need. Looking at the list we must be going for ages but it's only 2 nights. But they will be two long nights. The fear is the unknown. How will he go with the general? will there be any problems in surgery? will he wake up ok and not full of fear? Will he be ok with the leads and monitors? Will he still trust me after we do this? Will I be ok? Will I still breathe when he is in surgery? Will I cry when I see him? Will I be strong? Will I survive this? I am scared and this surgery is tiny compared to the one he is going to have. I have a list and that is supposed to make me feel prepared for this trip. I have organised the kids. I am organising my husband. Then I have to organise myself.
Our story with craniosynostosis. The good the bad and the ugly.
Welcome to my blog about my journey through cranio with my youngest Denver. I write this blog to benefit myself by getting my feeling out and hope that someone may read this and get an understanding about what we go through as mums dealing with cranio. Some people thimk the journey of cranio ends after the 1st cranio surgery but that is far from the truth, this is a life changing journey that goes on for the life of the child and their family. I often write things I would never have the courage to say out loud to anyone, often the feelings are very raw and honest. So join me on my roller coaster ride through cranio and lets get through this together.
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