Welcome to my blog about my journey through cranio with my youngest Denver. I write this blog to benefit myself by getting my feeling out and hope that someone may read this and get an understanding about what we go through as mums dealing with cranio. Some people thimk the journey of cranio ends after the 1st cranio surgery but that is far from the truth, this is a life changing journey that goes on for the life of the child and their family. I often write things I would never have the courage to say out loud to anyone, often the feelings are very raw and honest. So join me on my roller coaster ride through cranio and lets get through this together.

Thursday, June 23, 2011

can you believe it's been 12 weeks.......

Yep it was 12 weeks on Tuesday, unbelievable. It feels like some of the time has flown and then that other times have gone incredibly slow. We head back to the surgeon tomorrow for our 12 week post op check. I am nervous but not as nervous as i have been before. I feel OK at this moment. But as I think about it more I am starting to get a little nervous.  But Denver looks great, he is not sleeping in our bed anymore he has moved in to terry's bed, it's a step in the right direction. So not sure what we will find out tomorrow or what they are looking for. I hope to find out more about the ridge at the back of his head where they think his bone and slipped and see what they what to do with that. I am very excited as in the last three days Denver has started to remember things, which doesn't sound huge but for his it is as it was something he lost. He remembered a story I read to him and could read it back from memory, he remembered a place we went to today that we were last at in August. So little things like that have started to happen and Matt and I are so excited. It's those little things you take for granted, that matter so much. He has just recovered from his third infection of the suture wound so need to get that checked out and hopefully maybe get rid of the helmet. He has been allowed to wear it less and I am starting to like and get used to the new Denver. His hair is starting to grow. He and I, well everyone for that matter gets very nervous when he doesn't  have his helmet on so if we do get to toss it it will be interesting to see how that goes for us all. So all I can do now is hope and pray. Tomorrow's appointment involves no physical pain for Denver so that's a bonus and a half, not looking forward to the next round of appointments. Here's some pictures of took of Deni yesterday to show you his head 12 weeks post op.






 Pre-op and 12 weeks post op very different shaped head.


His cousin Marlee loves the helmet and thinks she is pretty cool.

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