It is hard to believe that we might be on the other side. It has taken such a long time to get here, but maybe we are here.
We had our 12week post op appointment last Friday and they are very happy with how Denver's head has been healing and the shape that it now has. Of course there are things we are still watching but overall the news was good. Denver has had three infections in his suture wound and if he develops another they want to operate to remove and undissolved stitches that may be left and causing the infection. The ridge on the back of his head is still prominent and a little cause for concern. The main worry that if something were to hit that ridge the skin would split open because of the shape of the ridge. They are hoping that it will mould and settle down but if not the will do an operation to smooth it down. They also spoke about that they might want to go back and make his scar smaller as it is quite large on the sides and no hair is growing there at the moment, but its a wait and see. None of those things even compare to were we have been and feel so minor at the moment, they are not life threatening and can wait for another day.
So that's all the concerns but there if GREAT news. Denver is now helmet free, yep helmet free. He has gained so much confidence and you can see that there is more light and joy in his eyes, its amazing. He now thinks he can do anything with often leads to me cringing, but he is so happy. He is so happy that there is nothing different or standing out on him, no one asks him about his helmet, I suppose he feels normal again.
They are so excited that Denver is getting memory back. Not as excited as us though. That he can now remember things that happened before the operation and after is so exciting. To know that all those memories can be slowly accessed again is mind blowing and brings a tear to my eyes. He was able to read a book back to me the other day from memory which I took for granted with my other kids, but didn't realise how important it is until Denver could no longer do it.
They think that Denver should be able to play contact sport when he is older. Once again to know that he will be able to join in at school sports and games and not be singled out is a huge relief.
So it felt like a happy fest of good information on Friday. It feels so much lighter, it's so nice to hear good news instead of doom and gloom.
We now only have one appointment a month for a few months so that's going to be good not to be always going back and fourth. We are not out of all the woods yet, but its good progress and we are so happy today and Deni is beaming and that's what we did this all for and that all that matters.
We are off on a holiday, me and the kids to have some fun, relax and be normal, no doctors, no helmets but lots and lots of fun.
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We had our 12week post op appointment last Friday and they are very happy with how Denver's head has been healing and the shape that it now has. Of course there are things we are still watching but overall the news was good. Denver has had three infections in his suture wound and if he develops another they want to operate to remove and undissolved stitches that may be left and causing the infection. The ridge on the back of his head is still prominent and a little cause for concern. The main worry that if something were to hit that ridge the skin would split open because of the shape of the ridge. They are hoping that it will mould and settle down but if not the will do an operation to smooth it down. They also spoke about that they might want to go back and make his scar smaller as it is quite large on the sides and no hair is growing there at the moment, but its a wait and see. None of those things even compare to were we have been and feel so minor at the moment, they are not life threatening and can wait for another day.
So that's all the concerns but there if GREAT news. Denver is now helmet free, yep helmet free. He has gained so much confidence and you can see that there is more light and joy in his eyes, its amazing. He now thinks he can do anything with often leads to me cringing, but he is so happy. He is so happy that there is nothing different or standing out on him, no one asks him about his helmet, I suppose he feels normal again.
They are so excited that Denver is getting memory back. Not as excited as us though. That he can now remember things that happened before the operation and after is so exciting. To know that all those memories can be slowly accessed again is mind blowing and brings a tear to my eyes. He was able to read a book back to me the other day from memory which I took for granted with my other kids, but didn't realise how important it is until Denver could no longer do it.
They think that Denver should be able to play contact sport when he is older. Once again to know that he will be able to join in at school sports and games and not be singled out is a huge relief.
So it felt like a happy fest of good information on Friday. It feels so much lighter, it's so nice to hear good news instead of doom and gloom.
We now only have one appointment a month for a few months so that's going to be good not to be always going back and fourth. We are not out of all the woods yet, but its good progress and we are so happy today and Deni is beaming and that's what we did this all for and that all that matters.
We are off on a holiday, me and the kids to have some fun, relax and be normal, no doctors, no helmets but lots and lots of fun.
So great to hear that you're seeing some light at the end of the tunnel. Lots of things to celebrate. Yay! So glad that Denver is so much happier too. :)
ReplyDeleteHave an awesome holiday!