Tomorrow we go back to hospital for an appointment at the wound clinic again, we will be three weeks post op. I must say that this time last week i was confident about how it was healing, it was clean, small, and normal colour. But this week a stitch came out and so did puss. Not alot but it was there. So i really just left it alone and a few more stitches have come out and so has some more puss and yesterday the wound started to go a bit red and today it is very red and raised, it looks sore and not quiet right. So i am not confident tomorrow that it will be a great appointment. I don't think they will do anything tomorrow but i think it will course concern and will mean that we are under watch for longer in the wound clinic, it just isn't healing properly, its like that section just cant seem to heal completely. I think they will say this isn't some thing we normally see, not sure whats happening here, lets watch and see what happens.
I am in contact with many many parents across the world that have kids with cranio (my strength comes from them, when i need it most) and alot of our kids are being diagnosed with ADD, ADHD and things like that. It is happening after surgery and when they are slightly older, we are beginning to think it cant be by chance that so many of our kids with cranio that have had the surgery are now getting diagnosed with this. It is such a concern especially after our appointment with the neuro psychologist the other week and once you are aware of some thing you start to see it every where in your child. I do not want to label Denver but its so hard. I am parenting a child that has suffered so much trauma in the past year, he can be really hard to parent and so exhausting. He is high maintenance at the moment and I know that it is natural for him to feel insecure and scared about not knowing what is going to happen to him next. He is missing out on normal five year old stuff. It can be hard to be with him all the time he is very full on and loves me to death often, but it can be just as hard to be away from him. I suppose we are both insecure and in need of the security that we get from each other.
So tomorrow we go back and it starting to feel like visiting and old friend who we catch up with every couple of weeks. If only we could do it over a pot of tea.
I am in contact with many many parents across the world that have kids with cranio (my strength comes from them, when i need it most) and alot of our kids are being diagnosed with ADD, ADHD and things like that. It is happening after surgery and when they are slightly older, we are beginning to think it cant be by chance that so many of our kids with cranio that have had the surgery are now getting diagnosed with this. It is such a concern especially after our appointment with the neuro psychologist the other week and once you are aware of some thing you start to see it every where in your child. I do not want to label Denver but its so hard. I am parenting a child that has suffered so much trauma in the past year, he can be really hard to parent and so exhausting. He is high maintenance at the moment and I know that it is natural for him to feel insecure and scared about not knowing what is going to happen to him next. He is missing out on normal five year old stuff. It can be hard to be with him all the time he is very full on and loves me to death often, but it can be just as hard to be away from him. I suppose we are both insecure and in need of the security that we get from each other.
So tomorrow we go back and it starting to feel like visiting and old friend who we catch up with every couple of weeks. If only we could do it over a pot of tea.
If only it could be done over a pot of tea! I hope today goes well. Thinking of you xx
ReplyDeleteThinking of you at the appointment lovely, wish I could come on the weekend for a proper catch up but will see you soon. xoxoxo
ReplyDeleteThank you. I just found this blog today. The day after being told my son must have surgery for sag. cranio. I was praying that the doctor would say I was silly and he is fine. Now my baby needs surgery within the next few weeks.
ReplyDeleteThe similarities in what we are going through are amazing. The diffrence being my son is 5, we live in California, USA and his father left us a long time ago. You are giving me the strngth to do this and not give up. Bless you and your family
Hi MonkeyMomma3,
ReplyDeleteI am an avid reader of Angy's blog and saw your comment. I am in California as well and my son had surgery for sag at the age of 4 1/2. Please email me if you need any info or help! Maybe we live close to each other. Jess
beneficialbee@gmail.com