Welcome to my blog about my journey through cranio with my youngest Denver. I write this blog to benefit myself by getting my feeling out and hope that someone may read this and get an understanding about what we go through as mums dealing with cranio. Some people thimk the journey of cranio ends after the 1st cranio surgery but that is far from the truth, this is a life changing journey that goes on for the life of the child and their family. I often write things I would never have the courage to say out loud to anyone, often the feelings are very raw and honest. So join me on my roller coaster ride through cranio and lets get through this together.

Wednesday, October 12, 2011

surgery

In coming back to write i am just trying to remember where i was last time i was here writing it feels like so long ago but also like it just happened. We have had surgery again. After being in the ER we were transferred to a ward for the night. When they came in the next morning they all had another look and decided that surgery was the best option and that Denver would be put on the emergency surgery list, hope fully today but maybe tomorrow. We weren't leaving until it was done and iv antibiotics were to continue. So we just spent the day filling in time and trying to keep Denver from remembering how hungry he was as he was fasting. it was a long day. Denver had to have another CT this morning and he loves having the chance to get out of bed and go for a walk and have a chat to some different people. He is so amazing. He does every thing he needs to and is as still as a statue for his CT. Denver ended up having a melt down about lunch time and then he fell asleep. He was not doing so good this time with being in hospital, we hadn't planned for this and we had no time to do any preparation for this visit and the surgery. It was showing that we were prepared for this. They start getting us ready for surgery as it might happen this afternoon or tonight hope full. and then suddenly there is a theatre nurse ready to take us. Shit, fucking shit, we are not ready. we are off, i take Deni to the toilet on the way so i ring Matt and my mum to let them know whats happening and that we are on the way to theatre. It is the first time that Denver is quite nervous about the surgery, one minute he is all over me and the next he wont talk to me.  He doesn't want to go to sleep normally he is fine but this time he is gripping me and saying mummy it hurts, mummy it hurts. it just breaks my heart i don't want to leave him, but his eyes roll back in his head and he is asleep, so time for me to leave. To the waiting room. I feel scarred for this surgery, i haven't processed it and we don't know exactly what they will be doing. Matt finally arrives.
The surgeon comes and says its all over hes doing really well and they removed the side of the scar and have sent it off to the lab and they will know more once it comes back. Deni is awake and happy to see us. We are back on the ward in no time, settle in for the night. I am happy that the infection is now gone and that it is done.

It started off just looking like a blood blister.

Now it's just a dry crusty puss ball.

And it's exploding.

The green is me outlining the infection so i know if it spreads.

5th infection in this one spot. they just keep getting worse.

Us in the ER, he has his iv going and is fasting.

A smile. Still in the ER.

Straight after surgery. Infected area removed.

Day after. The first scar goes up from the ear this one goes across. So x marks the spot. We call them his pirate stitches.

Looking good. Time to go home.

We leave the next morning. and i walk out knowing that we will be back but choosing to ignore that at the moment.

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